"I don't resent having had Acromegaly; it's given me perspective and resilience and knowledge to learn about the body."
https://acrotales.com/chrissy/
In this episode of AcroTales we hear from Chrissy who lives in the Cotswolds in the UK. Chrissy is 44 and was diagnosed in 2013.
Everyone's AcroTales is unique and comes with surprises, but there's no doubt that Chrissy's tale is one of the most jaw-dropping stories out there. Listen to the incredible way she received her diagnosis and how she has embraced life since treatment.
Reflexology With Chrissy
What's it like living with the symptoms of a condition yet not knowing whether you actually have that condition or not?
#acromegaly
"It's probably not Acromegaly because it's rare."
How often have we heard this sentiment in the field of rare disease? I am sure Medics4RareDiseases will have plenty to say about this!
Episode 20 of AcroTales and we meet Thomas from Switzerland. He was only diagnosed towards the end of 2023 and surgery performed a few months ago, so this is is very new and fresh for him.
Listen now: www.acrotales.com/thomas
Full episode also on Spotify all all other Podcast apps. Full video available later today!
AcroTales: Roz
"If I laughed hysterically, I would get what my friends called a 'Roz headache'."
➡️ NOW ON YOUTUBE!
In Episode 19 of AcroTales we speak to Roz from Essex in the UK. Roz was diagnosed in 2005 after a succession of symptoms that had been present since her teens.
Roz's journey has not been easy and had her third round of surgery only six weeks ago! (March 2024). However, Roz faces her Acro-challenge with a great sense of humour and is now a Volunteer Ambassador for The Pituitary Foundation (UK), proving that every cloud has a silver lining. We also discuss how vital it is to have a competent Endocrinologist and touch upon the current state of the NHS.
www.acrotales.com/roz
Jill Sisco - AcroTales
"I have met some of the finest people in the world because of Acromegaly."
We kick start 2024 with a personal and honest conversation with a true acromegaly advocate: Jill Sisco.
Jill needs no real introduction. For over ten years she has been at the helm of the Acromegaly Community and leading a mission to support people with Acromegaly, whatever the stage of their journey. We chat about her complex diagnosis, the role of being an advocate and the changes she's seen over the years.
Become a Supporter and watch the video interview here: https://www.buymeacoffee.com/danj.uk/acrotales-ep-18-jill-sisco
The podcast will be released later today, or listen now on the AcroTales website: https://acrotales.com/jill
