Surreal day! I was fortunate enough to attend a press conference hosted by health minister, Mark Butler 🤯 along with my good friend and fellow heart transplant survivor, Graeme.
Graeme and I met in 2017 when I was first listed for transplant and was attending cardiac rehabilitation. At that time, he had an LVAD. An LVAD is essentially a mechanical heart. It helps to pump blood from the left ventricle of the heart to the rest of the body. Google it- not for the faint hearted. We had our transplants less than one year apart and have had wildly different experiences. He is essentially super man in the transplant community, which is why he was asked to share his story and chime in about the new and exciting changes that are being made within this space.
Mark Butler also announced that they have doubled the number of medicines eligible for 60 day scripts, which for transplant recipients, is HUGE. Most of my spare time is spent at the GP and pharmacy chasing up medications so this will literally but that time in HALF!
AND a medication that has been shown to decrease the symptoms of heart failure has also been recently added to the PBS to hopefully (🤞🏽) keep heart failure patients out of the hospital and stable for longer. This can also mean a lesser chance of requiring a transplant! Win win.
However, keep having those uncomfortably morbid conversations with your families regarding organ donation. It saves lives. ❤️
WELCOME TO OUR PODCAST, ✨Second Time Lucky✨
Considering organ donation has been around for over 50 years (yep, you read that right!), it’s still seen as a taboo and super uncomfortable topic of conversation- we’re here to change that!
While waiting for my new heart I relied on podcasts to ease my anxieties about my upcoming transplant but I struggled to find one that was lighthearted and enjoyable to listen to so we decided to create one that does exactly that!
We ultimately decided to make this podcast to raise awareness for organ donation, destroy any myths and misconceptions that surround transplants and give you a real life glimpse into life post transplant. But most importantly we want you to initiate conversations about organ donation- talk about it with your family, friends, neighbours or even your damn dog!
Let’s make organ donation a topic of conversation that doesn’t feel morbid or make people feel uncomfortable but let’s shine the light on the brave donors, their families and the lives changed through this miraculous process.
Join us, and our loved ones, and some fellow transplant recipients special guests in podcast land for some bodacious boldly banter!!
Second Time Lucky will launch next week so WATCH THIS SPACE for some cheeky teasers ’til then!
❤️