amkalena

03/08/2020

I pledge Hillsborough High School in NJ to receive a life-changing Endometriosis education kit from 💛 On Friday, I had my second excision surgery and education is extremely important to women of all ages and people in the healthcare field. If you’d like to pledge your own nurse kit, please go to NursesKnowEndo.com

01/21/2020

Oh boy. Here it comes.

01/20/2020

When you have a chronic illness, you research and read everything about it. And because of that, you tend to know more than your doctors.

01/12/2020

01/06/2020

This is a great illustrative breakdown of how endometriosis affects a woman's whole body.

Where do I get my information from: http://armandoh.org/resource HIT THE LIKE BUTTON! Facebook: https://www.facebook.com/ArmandoHasudungan Support me: http:/...

12/13/2019

My first surgeon tried to push Orilissa on me very hard. I did my own research on the drug and therefore knew what the potential side effects could be. This drug is very dangerous. While I liked my first surgeon a lot, I came to find out he was also being paid by the Pharma company who makes Orilissa. This is why as a patient it always pays to so your own research first before committing.

Check out our IGTV videos for a more in depth explanation of how these drugs operate in the body!

if we are to be taken seriously by healthcare professionals it is CRUCIAL we know what we are talking about regarding these drugs. We are experts in our disease, but we need to be as close to experts as we can be with these drugs as well.

If we can speak the language, they can better understand why we don't want drugs that don't treat endometriosis. We don't want bandaids. We don't want drugs riddled in controversy.

We will teach our community how to effectively communicate this biochemistry language.

WE CAN DO THIS. KEEP LEARNING. We are here for you. This knowledge is not only reserved for doctors.
Our community is SMART.

10/17/2019

I went to so many doctors for over 11 years before finally being diagnosed with endometriosis. I first suffered with migraines and was told I was making them up and might be a drug users, before a neurologist believed me. I went to a gastroenterologist, who couldn't definitively diagnose me and said it might just be IBS. My gyno finally heard me on all my symptoms that maybe didn't seem connected but were after 11 years. Pelvic pain is just one thing, but it's not the only thing.

10/07/2019

These Endo Warriors talk about their struggle getting a diagnosis in a world where there's a "gender pain gap." I've experienced the "gender pain gap" many times, most recently during my last hospitalization in August when a male ER lead doctor refused to treat me and told me to talk ibuprofen. I was screaming in pain and couldn't stand. A female doctor later admitted me. This a real issue that no one talks about. Let's talk about it and know that it's real.

10/07/2019

Pajamas but fashion 💁🏼‍♀️ Finding clothes that feel comfortable but cute on your endo belly can be really difficult. I can’t wear anything tight-fitting or it causes me a great deal of pain. It’s especially difficult to find clothes to wear to work. That’s why I wear clothes that I call pajamas but fashion. I can still look cute but feel comfortable for my health at the same time.