Zebra Moon Collective

29/07/2024

I had a great vacation then, I went to 6 doctors appointments.

21/06/2024

Thanks Crookston Times for printing our article to raise awareness for Ehlers Danlos Syndrome. We have had several Ehlers Danlos patients reach out to us for support.

Crookston Times The City of Crookston, Minnesota Crookston Area Chamber Crookston, Minnesota Crookston Gang Supporting Small Businesses Near Crookston, MN

19/06/2024

EDS Awareness at the Hugo Good Neighbor Days. Zebras LETS ROLL.



Our golf cart was all decorated with ZEBRA stripes and signs for EDS and HSD.

09/05/2024

Such an incredible effort to increase EDS awareness !!! Go zebras ❤️🦓🗽

🧡The Ehlers-Danlos Society billboard campaign on the Nasdaq billboard is now live in Times Square, New York, USA!

The 15-second awareness video will be shown four times per hour across seven days. ⁠This is incredible for awareness and we have the opportunity to reach so many new people and make them aware of EDS and HSD. ⁠Approximately 330,000 people pass through Times Square each day!
⁠
A huge thank you to the members of our community who came to meet us in Times Square. Sadly due to a technical error, the billboard did not go live on May 4th as planned, but everyone was incredible and took the time to speak with us and take part in our Facebook and Instagram live. Thanks to the magic of Photoshop, this is what it would have looked like behind us, it was amazing to meet everyone!
⁠
The billboard video is being shown until May 14 and you can see it at Nasdaq MarketSite Billboard, 4 Times Square (43rd & Broadway), New York City. If you live close by or are visiting, be sure to take a photo with it and tag us!

You can also watch live via https://www.webcamtaxi.com/en/usa/new-york/nasdaq-4-times-square.html

Check our next post for the video!

06/05/2024

https://www.facebook.com/share/ZVxGPR7DA5FR8xFD/?mibextid=WC7FNe

I wish our eyes could see what microscopes can see; maybe then I and so many other souls with Ehlers-Danlos Syndrome wouldn’t be gaslit and told it’s in our heads. The reality is...it’s actually “in” our collagen. This is what collagen looks like under a microscope—on the left is ‘normal’ collagen, and on the right is what my collagen looks like because of Ehlers-Danlos Syndrome.

Ehlers-Danlos Syndrome is a connective tissue disorder that causes faulty collagen; collagen is the most abundance protein in the human body and is the “glue” that holds the body together. Collagen is literally essential to every system in the body & there are 4 types of collagen—

Type I provides the structure to skin, bones, tendons, connective tissue, fibrous cartilage and teeth; Type II cushions the joints and is found in elastic cartilage; Type III supports the structure of muscles, organs, and arteries; Type IV is found in the layers of skin and helps with filtration.

This is why many with Ehlers-Danlos Syndrome also live with other comorbid conditions—POTS, MCAS, Gastroparesis, Chronic Migraine, IBS, Fibromyalgia, hernias, Dental issues, bladder disorders, scoliosis, and chronic fatigue syndrome are just *a few* of the other illnesses that can come along with EDS.

https://pubmed.ncbi.nlm.nih.gov/23051630/

[ID—a picture is taped to a piece of watercolor paper that is splashed with black ink and gold glitter; the picture shows a comparison of collagen between someone with EDS and someone without. The pic on the left reads ‘normal’ with red font; the collagen looks thick. The pic on the right reads “EDS” in red font; the collagen is noticeably thinner and resembles spider webs. Marie’s Instagram .a.r.e.advoc8 is written below the picture on the bottom right.]

19/04/2024

🫥Invisible disabilities can literally make you invisible!

In the past, someone I previously admired told me how annoying it was that I was always 'banging on' about my invisible disabilities. They were a full time wheelchair user, but went on to say how, as they didn't feel the need to constantly speak about their invisible disabilities, I definitely shouldn't.

Of course, I am fully aware there are people out there who struggle more than I do; people in more pain, people with less mobility and people whose depression and anxiety are worse, but I can only share stories from my perspective, and there's never any intent to undermine anyone else's lived experiences. I just want to raise awareness for those who don't enjoy writing as much as I do.

But invisible disabilities, by their nature, are just that; invisible.

Nobody can see them and, when my health takes over, it can sometimes feel like I become invisible, especially when I can't work, swim, or get out on Flora so, whilst those words are always in the back of my mind when I post, talking also helps me feel visible again, so thank you for listening to my ramblings!

29/03/2024

Symptoms of Neuropathy

29/03/2024

1 medical appt leads to at least 3 more referrals.

’zebra

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29/03/2024

🌸 I’m proud of you 🌸

29/03/2024

I am constantly in pain ~ Chronic Pain ~ CRPS Welcome as always to Like ✅ Share 🙌 & Comment 🗣

29/03/2024

7 medical appointments. GO to the doctor to get better and you are destroyed by the energy use.
’ZEBRA

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23/03/2024

WALK LIKE AND EGYPTIAN OR A WOBBLY WOMAN?

23/03/2024

WALK LIKE AND EGYPTIAN.

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22/03/2024

Ice Shelter update. Still outside dealing with EDS/POTS/MCAS

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18/03/2024

Adaptive jar/bottle opener.

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18/03/2024

TMD/TMJ issues in EDS patients.

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02/03/2024

Accupuncture is an effective treatment for EDS symptoms.

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02/03/2024

02/03/2024

POTS and passing out while driving.

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27/02/2024

2 years without a DATE NIGHT due to hEDS/MCAS/POTS.

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23/02/2024

Check out ZebraMoonCollective's post.

23/02/2024

125 Followers, 486 Following, 45 Posts

23/02/2024

Symptoms of Ehlers Danlos Syndrome

22/02/2024

PT Time

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06/02/2024

Not good.

02/02/2024

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