You Can't See My MG

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You Can't See My MG You Can't See My MG!
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07/07/2024
📧📧📧📧📧📧📧Check your emails NORD has shared a special Zoom they’re holding this week.
24/06/2024

📧📧📧📧📧📧📧Check your emails
NORD has shared a special Zoom they’re holding this week.

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04/06/2024

Make it fun 🤩

04/06/2024

Balance can be a challenge for kids with generalized Myasthenia Gravis.

❣️❣️❣️Hey did you know this month is month❣️❣️
03/06/2024

❣️❣️❣️Hey did you know this month is month❣️❣️

WHAT IS MYASTHENIA GRAVIS?

29/04/2024

Let’s work on that hip weakness

Next meeting date 7/13/2024. Mark your Calendars!
28/04/2024

Next meeting date 7/13/2024. Mark your Calendars!

28/04/2024

It was an awesome meet up!
Kids hung out in a Zoom room chatting and sharing whatever they wanted. We had a young vibrant college graduate stop in and share her Myasthenia Gravis experiences and new parents were able to hear and understand from other patients perspectives and experiences.
This is what it’s about a meeting place to feel community, to share and learn from others with MG.
Hope to see new faces at the next one!

Saturday, April 27, 20242pm/PST (4pm/CST & 5pm EST)
20/04/2024

Saturday, April 27, 2024
2pm/PST (4pm/CST & 5pm EST)

29/03/2024
14/03/2024

Hello Families!

The next Kids Group Meet Up is just a few weeks away in April.
Please be sure that you have registered with MGFA to gain access the room in the MGFA online Community where the link in posted for privacy and safety of the kids, this secures we know who's entering the Zoom Room.

Also if you have a separate device for your child, it would be great for when we put the kids in a separate breakout room to chat amongst each other, if they would like.

Meetings will take place in the MGFA Online Community. Sign up or log in at https://myasthenia.org/MG-Community/MGFA-Online-Community. Once logged in, you will see a small town square. Click the sign to navigate to the West Campus and enter the Pediatric Center. You’ll see signage directing you to the virtual meeting room.

25/02/2024

My intentions when I created this planner was to help myself organize and track my daughters medical treatments. I have decided that my Medical Planner for caregivers will be a product I will give away by fundraising.

If you know a caregiver with a newly diagnosed child, request the planner and receive other rare disease resources for families...
we want to thank Myasthenia Gravis Foundation of America for all the work they do.


If you are looking for an awesome cause to support, here’s one. This is my daughter Kaleeya. She is 11 and has Myastheni...
20/02/2024

If you are looking for an awesome cause to support, here’s one. This is my daughter Kaleeya. She is 11 and has Myasthenia Gravis a rare neuromuscular autoimmune disease. We would love your support in helping other kids like Kaleeya get resources that support them throughout their treatments.

Thanks to My Walk with MG
for supporting us at the beginning of our journey.

Good Morning!!

We hope everyone is doing well!!

Our Kids mean so much to us and we want to help them in their Myasthenia Gravis Journey. There are a number of them headed towards thymectomy surgery and NEED YOUR HELP!

With a donation of $25, we will be able to bless them with a surgical pillow to help after surgery.

We pride ourselves on Community Service work within our Community because our goal is to help spread educational information amd resources about Myasthenia Gravis.

Because of EVERYONE'S generosity, your donations help us help OUR fellow kids like Kaleeya!!
Thank you for all the support in helping us grow My Walk with MG!!!



Donate here:
Mywalkwithmg.org
Cash App: $MWWMG

❄️🩵
13/02/2024

❄️🩵

MGteam | The social network and support group for those living with myasthenia gravis

Hello friends,Be sure you are on the email list to get the notifications for the next Kids MG Support Group Metting!MGFA...
12/02/2024

Hello friends,

Be sure you are on the email list to get the notifications for the next Kids MG Support Group Metting!

MGFA Pediatric Support Group Sign Up form
https://forms.gle/vgKqAr93tyAEG65f9

Email Sign Up

Happy New Year!
01/01/2024

Happy New Year!

31/12/2023

It's almost that time!
This Saturday, January 6, 2024

2pm PST/5pm ET

Meetings will take place in the MGFA Online Community.
Sign up or log in at

https://myasthenia.org/MG-Community/MGFA-Online-Community

Once logged in, you will see a small town square. Click the sign to navigate to the West Campus and enter the Pediatric Center. You’ll see signage directing you to the virtual meeting room.
Take a tour, and check out all the resources while you’re there. If you’re having trouble finding the door please send an email to [email protected]

31/12/2023

We’re just one week away from our kids meet up🎉🎉🎉

The zoom link will be emailed to all who registered, see you there!

Mark your calendars!!
30/11/2023

Mark your calendars!!

❄️🙏🏽❄️🩵
25/11/2023

❄️🙏🏽❄️🩵

Find ways to help manage your generalized myasthenia gravis (gMG) by signing up to stay in the know about the latest information, resources, and research.

23/11/2023

Let’s move ❄️🩵❄️🩵

22/11/2023

We love beginner friendly work outs ❄️🩵

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Tuesday 09:00 - 20:00
Wednesday 09:00 - 20:00
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As we sit here, on our electronics and complete #25 #ivig, I still can’t believe this is life today🥹but I’m very grateful because we are not where we were before diagnosis and that is a HUGE blessing. Shout out to the parents who continue to maintain a steady life through all the ups and downs of dealing with consistent medical treatments ❣️❣️❣️#autoimmunedisease #myastheniagravis #livingwithmyastheniagravis #invisibleillness #disabilities

Kids Mg Support Group Meeting Date
Kids Mg Support Group Meeting Date

Hello Families! The next Kids Group Meet Up is just a few weeks away in April. Please be sure that you have registered with MGFA to gain access the room in the MGFA online Community where the link in posted for privacy and safety of the kids, this secures we know who's entering the Zoom Room. Also if you have a separate device for your child, it would be great for when we put the kids in a separate breakout room to chat amongst each other, if they would like. Meetings will take place in the MGFA Online Community. Sign up or log in at https://myasthenia.org/MG-Community/MGFA-Online-Community. Once logged in, you will see a small town square. Click the sign to navigate to the West Campus and enter the Pediatric Center. You’ll see signage directing you to the virtual meeting room.

It's almost that time! This Saturday, January 6, 2024 2pm PST/5pm ET Meetings will take place in the MGFA Online Community. Sign up or log in at https://myasthenia.org/MG-Community/MGFA-Online-Community Once logged in, you will see a small town square. Click the sign to navigate to the West Campus and enter the Pediatric Center. You’ll see signage directing you to the virtual meeting room. Take a tour, and check out all the resources while you’re there. If you’re having trouble finding the door please send an email to [email protected]

Giving Tuesday is a global movement, occurring annually on the first Tuesday following Thanksgiving. TODAY! It reminds people of the joy and fulfillment of helping others and contributing to charitable causes that resonate with their values. So please choose a non-profit close to your heart or make a donation today. Here's our Link: https://www.paypal.com/donate/?hosted_button_id=56UHVB9Q7DVXU

You can’t see my mg❄️🩵Myasthenia Gravis is not an illness you can see when you meet someone with it. I know some people wonder why she has a a ♿️and yes kids at school have questioned her in the past. That’s why it’s important to teach your kids there are some chronic illnesses that are invisible to the eye and to respect other’s disabilities. #invisibleillness #autoimmunediseaseawareness #Myastheniagravisawareness #kidswithmg

You can’t see My MG❄️🩵#invisibleillness #raredisease #myastheniagravis #Myastheniagravisawareness

You Can’t See My MG #Myastheniagravisawareness

We are currently on our 16th infusion, but you never forget your first🩵🩵🩵#ivig #medicalmom #myastheniagravis #autoimmunedisease #antibodies #prednisolone

Behind the Scenes of IVIG Infusion for Myasthenia Gravis. We arrived at 8am today, it’s always at least a 6 hour visit, she enjoys the knap she gets 🩵🩵🩵#pediatrictherapy #ivig #autoimmunewarrior #autoimmunediseaseawareness

I appreciate all the IV nurses of the world. I know you all only want one stick too. But some days are two stick days. If you know you know. #IVIG #ivtherapy #myastheniagravis #autoimmunedisease

This journey is just beginning… one of very few options for someone with myasthenia Gravis to acquire some level of relief from all the symptoms. This one went very well, one stick, which has been far and few for my young #legendarygirllee #sickkids #autoimmune #immunocompromised #MG #myastheniagravis #autoimmunedisease #IVIG

MG described in a graphic T-shirt #MGStrong #Myastheniagravisawareness #youcantseemg #myastheniagravis

Myasthenia Gravis Awareness is in June this beauty talks about her MG life 🩵#youcantseemg #raredisease #myastheniagravis #MGStrong

It takes more than a Wall calendar to manage my daughter’s many appointments, this planner can purchased in digital or physical form. MediMom Caregiver Planners

So immediately after eating meat, I drink the TLC Iaso Tea detox tea, because I’m not waiting for that red meat to digest, sample the tea for free. #detoxyourbody #IasoTea #cbdwellness

Free Printable Planner pages https://prodigious-leader-551.ck.page/cdf691abbe

One of our wonderful affiliates, browse, shop, share 💋 #mompreneur #momstuff #coffeemug #tshirt #journals www.medimomcaregiverplanners.com

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