Bionews

Bionews is a digital health solutions company that empowers rare disease communities with trusted information & news, fostering a space where hope thrives.

12/15/2025

How people with hemophilia can navigate everyday spaces: https://bit.ly/49bEHVX

This accessible parking space is clearly marked — but blocked by an electric pole downguy. Situations like this are common reminders that many environments are still not fully accessible.

For people living with hemophilia, navigating these gaps often requires planning, awareness, and adaptation. From parking to sidewalks and stairs to public transportation, moving through spaces that weren’t designed with mobility issues in mind is part of daily life.

12/12/2025

Adapting to keep some independence with ALS is key.

12/11/2025

What do you want for Christmas? Tell us below! 🎁💬

12/09/2025

✨ Columnist Desiree Lama talks about knowing her limits and communicating them to those around her for this holiday season. https://bit.ly/4pi2RE3

12/08/2025

SMA advocate, Brie Halbers shares: "You know that feeling when you’re chatting with a doctor and you can tell they have no idea how to even go about treating your SMA?

Yeah. It’s the worst.

I used to trust my doctors implicitly. I still trust them, but the older I get, the more I realize how important it is to get a second opinion. I schedule with specialists all the time now, especially when a doctor tells me to “wait and see if things get better.”

My SMA is complex and requires complex care. That means advocating for my body - and being a little bratty when people who think they know best aren’t listening.

If you can relate, I encourage you to check out . I’ve worked for going on nine years now, and I can’t tell you how helpful their content has been. From community forums to news articles to patient and caregiver columns, SMA News Today has tons of resources to help you navigate life with rare disease. I’ve found it invaluable, especially when it comes to advocating for my health.

Check it out and let me know what you think!"

12/05/2025

Feel your rhythm shift: https://bit.ly/4pPsLyL

Sarah’s reflection offers a grounded look at how MG can sync with the seasons and why paying attention to those patterns can become its own form of self care. Her words are a quiet validation for anyone who feels weather changes in their body long before the forecast catches up ☔

12/04/2025

Accessibility shouldn’t require experience — yet so many only see the gaps once rare disease becomes part of their reality.

Help us change that. Share this to spread awareness and make our world more accessible for everyone.

12/03/2025

Today we celebrate the strength, creativity, and resilience of the disability community. 💙

Disability is diversity — and every story deserves to be seen and heard.

12/02/2025

Ready to travel? https://bit.ly/4ojG5KK ✈️ ♿

Traveling with SMA takes extra care—but with the right planning, it can be safe and rewarding. Talk to your doctor, research accessible options, arrange assistance early, and pack smart.

Remember to pace yourself and enjoy the journey. Your adventure awaits! 💙

12/01/2025

New research highlights important clinical markers for kidney disease in AAV. https://bit.ly/4abylXC

High inflammation levels, a high number of blood-clotting-inducing platelets, blood in the urine, and lung involvement were all linked to a higher risk of pauci-immune glomerulonephritis — a common kidney complication in AAV.

Learn more about the research here: https://bit.ly/4abylXC

11/28/2025

"Constantly finding ways to work around my terminal illness"

11/27/2025

We are so thankful for our caregivers and the love, care, and support you give! 💛

https://bit.ly/47R5t5s to read coping strategies for caregivers.

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