Bionews

Bionews is a digital health solutions company that empowers rare disease communities with trusted information & news, fostering a space where hope thrives.

12/22/2025

Learn more about MS here: https://bit.ly/44EsAhz

Sometimes MS feels invisible… until you meet people who actually get it.
That’s why I’m shouting out MS News Today — a space built for real stories, real community, and people who understand what this life feels like.

If you live with MS, love someone who does, or just want to understand it better, give them a follow.
Community matters. Awareness matters. Being seen matters.

12/19/2025

https://bit.ly/3L6VvEq

Living with MG doesn’t just shape the person diagnosed. It also quietly shapes the emotional lives of partners, friends, and family.

Sarah explores the guilt healthy loved ones may carry, the fear of saying or doing the wrong thing, and the complicated space between empathy and helplessness. It’s a piece that speaks to both patients and caregivers, without blame or pity, and reminds us that illness creates shared realities, not opposing roles.

12/18/2025

Chronic Illness friends understand...

12/17/2025

Thank you .blog for this post. " asked me for a few holiday gift ideas for people with SMA… and I immediately realized I couldn’t just pick a few, so here we are: a whole guide 🫶✨

There are honestly so many little tools and products that have changed my life and made day-to-day things feel a bit more accessible.

If you have SMA, I hope this sparks some ideas for your holiday wish list. And if you’re shopping for someone with SMA, I hope this makes the process way less stressful.

For more posts like this and a whole feed of SMA-focused content, follow !"

What would you add to this holiday gift guide? 🎁❄️

12/16/2025

How do you explain MS fatigue to friends, family or coworkers? https://bit.ly/44C1Luk

This column shares how the “spoon theory” can help you communicate: each day may feel like you start with a handful of spoons (energy), and every activity uses some, so you must choose how you spend them.

12/15/2025

How people with hemophilia can navigate everyday spaces: https://bit.ly/49bEHVX

This accessible parking space is clearly marked — but blocked by an electric pole downguy. Situations like this are common reminders that many environments are still not fully accessible.

For people living with hemophilia, navigating these gaps often requires planning, awareness, and adaptation. From parking to sidewalks and stairs to public transportation, moving through spaces that weren’t designed with mobility issues in mind is part of daily life.

12/12/2025

Adapting to keep some independence with ALS is key.

12/11/2025

What do you want for Christmas? Tell us below! 🎁💬

12/09/2025

✨ Columnist Desiree Lama talks about knowing her limits and communicating them to those around her for this holiday season. https://bit.ly/4pi2RE3

12/08/2025

SMA advocate, Brie Halbers shares: "You know that feeling when you’re chatting with a doctor and you can tell they have no idea how to even go about treating your SMA?

Yeah. It’s the worst.

I used to trust my doctors implicitly. I still trust them, but the older I get, the more I realize how important it is to get a second opinion. I schedule with specialists all the time now, especially when a doctor tells me to “wait and see if things get better.”

My SMA is complex and requires complex care. That means advocating for my body - and being a little bratty when people who think they know best aren’t listening.

If you can relate, I encourage you to check out . I’ve worked for going on nine years now, and I can’t tell you how helpful their content has been. From community forums to news articles to patient and caregiver columns, SMA News Today has tons of resources to help you navigate life with rare disease. I’ve found it invaluable, especially when it comes to advocating for my health.

Check it out and let me know what you think!"

12/05/2025

Feel your rhythm shift: https://bit.ly/4pPsLyL

Sarah’s reflection offers a grounded look at how MG can sync with the seasons and why paying attention to those patterns can become its own form of self care. Her words are a quiet validation for anyone who feels weather changes in their body long before the forecast catches up ☔

12/04/2025

Accessibility shouldn’t require experience — yet so many only see the gaps once rare disease becomes part of their reality.

Help us change that. Share this to spread awareness and make our world more accessible for everyone.

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