Bionews

Bionews is a digital health solutions company that empowers rare disease communities with trusted information & news, fostering a space where hope thrives.

01/05/2026

Thank you to ALS advocate, James Smith, for this video! Let's spread awareness together!

01/02/2026

Looking for a gift for someone living with SMA? https://bit.ly/4aC3944

Finding a gift for someone living with SMA can feel complicated, but it doesn’t have to be. The gifts that land best are usually the ones that quietly say, “I see what your days are actually like, and I want to ease a bit of that load.”

That might mean something practical that saves energy, something comforting for long medical days, or support that makes life a little more accessible and less draining.

If you’re unsure what truly helps, it’s more than okay to ask—honest questions show respect, not awkwardness, and they often lead to the gifts that matter most.

01/01/2026

Discover more: https://bit.ly/4j8hebN

New Phase 3 data show Hympavzi (marstacimab) significantly reduced bleeding and improved quality of life for adults and teens living with hemophilia A or B who have inhibitors.

Results from the BASIS trial suggest a weekly, non-factor option may help reduce treatment burden for this community.

12/31/2025

A look back at the posts that resonated most this year with the MS community 📊 https://bit.ly/3KFmjeX

🧡 These moments sparked conversation, connection, and community—and that’s what matters most.

12/30/2025

Learn more here: https://bit.ly/4aj5wc1

Thank you to Ashley Brooks for this post! ⚠️ Weakness detected.
That’s my body’s signal when my Myasthenia Gravis symptoms start to activate.

When it happens, I don’t push — I listen.
🪑 I sit down
🕶️ I put my shades on (hello light sensitivity + double vision)
💧 I sip water and give my body time to recalibrate

This is what living with an invisible illness looks like in real time — learning when to pause, not power through.

✨ Follow Myasthenia Gravis News for trusted information, lived experiences, and MG resources.

Grateful for brands that support chronic illness creators and help amplify real stories.

12/29/2025

Take a closer look at scoliosis in SMA: https://bit.ly/4iPDEhP

Scoliosis is a common part of life with SMA and can affect comfort, movement, and even breathing over time.

For some, monitoring or bracing may help support the trunk and slow curve progression; for others, surgery might be discussed to stabilize the spine and protect lung function, each with real trade‑offs to consider.

If scoliosis is on your radar right now, you are not alone in weighing options, asking hard questions, and pushing for care that fits your life and goals.

12/26/2025

How do you describe FA to someone new you meet?

12/25/2025

https://bit.ly/4j859mZ to hear more about what the holiday means when living with a Rare Disease.

Wishing our Bionews community a happy and healthy holiday season. 🎄✨

Thank you for being part of our community — we’re grateful for you today and always.

12/24/2025

With so many resources out there, it can be hard to know where to turn and who to trust.

When you live with a rare disease, information isn’t just “helpful”.
It’s part of how you stay safe, confident, and prepared.
And that’s why finding reliable sources matters.

has become a place I return to again and again.
Their updates are accurate, easy to understand, and grounded in both science and lived experience… a combination that helps me advocate for myself and navigate my CF care with more clarity.

12/23/2025

Learn More: https://bit.ly/49llj97

For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.

Advocacy can light a fire, but it also takes a physical toll — every denial, appeal, and “fight to be believed” costs energy that our bodies don’t always have to spare.

12/22/2025

Learn more about MS here: https://bit.ly/44EsAhz

Sometimes MS feels invisible… until you meet people who actually get it.
That’s why I’m shouting out MS News Today — a space built for real stories, real community, and people who understand what this life feels like.

If you live with MS, love someone who does, or just want to understand it better, give them a follow.
Community matters. Awareness matters. Being seen matters.

12/19/2025

https://bit.ly/3L6VvEq

Living with MG doesn’t just shape the person diagnosed. It also quietly shapes the emotional lives of partners, friends, and family.

Sarah explores the guilt healthy loved ones may carry, the fear of saying or doing the wrong thing, and the complicated space between empathy and helplessness. It’s a piece that speaks to both patients and caregivers, without blame or pity, and reminds us that illness creates shared realities, not opposing roles.

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3 W Garden Street, Suite 700
Pensacola, FL
32502

Website

http://bionews.com/

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