Bionews

Bionews is a digital health solutions company that empowers rare disease communities with trusted information & news, fostering a space where hope thrives.

01/13/2026

Learn more about SMA here: https://bit.ly/4aTt5Z6

Thank you to SMA advocate, Tori Hunter, for this post!

Here’s to 2026 ✨🌙
I’m being more intentional about where my energy goes this year. What are you focusing your energy on?

In partnership with 💙 If you live with SMA or support someone who does, I really recommend giving them a follow. They share the latest SMA updates, along with advice and stories from the community, which is such a great resource as we head into this new year!

01/12/2026

Health myths don’t appear out of nowhere: https://bit.ly/3N4Z5Qf

They’re shaped by history, access, culture, and what people were taught to rely on when medical care wasn’t always available or trustworthy.

Allyx here 👋🏻 and in my latest column, I write about how growing up in different places — and different generations — shapes how we understand illness. When something is familiar, we recognize it. When it’s rare or invisible, myths tend to fill the gaps.

01/09/2026

https://bit.ly/49hFpzW 🧡💐 This season, giving yourself grace means something different. Living with MS reshapes what truly matters — patience with your body, acceptance of change, connection with others, and realistic goals that honor where you are right now.

01/08/2026

Let us know in the comments if you've experienced this - and what happened.

01/07/2026

Thank you to SMA advocate, Brie Halbers, for your post. If you’re anything like me, you’re probably starting to reflect on the past 12 months. Maybe you’re proud of everything you’ve accomplished this year. Or maybe, like me, you’re wondering where all that time went.

It’s easy to judge ourselves by someone else’s standards. To feel like we’re failing simply because our bodies function on crip time. But I’m here to tell you that what you did in 2025 was enough.

If you made it through?

If you survived?

That’s enough. You’re enough. And yes, I’m preaching to myself here.

If you’re also starting to get that yawning, end-of-the-year, antsy feeling in your gut, can I suggest checking out ? Our site is full of columns by other crip timers who are looking back on 2025 and celebrating what it brought us. Even if it knocked us off course. Even if it feels like all we did was persist.

In life with SMA, that is more than enough."

01/05/2026

Thank you to ALS advocate, James Smith, for this video! Let's spread awareness together!

01/02/2026

Looking for a gift for someone living with SMA? https://bit.ly/4aC3944

Finding a gift for someone living with SMA can feel complicated, but it doesn’t have to be. The gifts that land best are usually the ones that quietly say, “I see what your days are actually like, and I want to ease a bit of that load.”

That might mean something practical that saves energy, something comforting for long medical days, or support that makes life a little more accessible and less draining.

If you’re unsure what truly helps, it’s more than okay to ask—honest questions show respect, not awkwardness, and they often lead to the gifts that matter most.

01/01/2026

Discover more: https://bit.ly/4j8hebN

New Phase 3 data show Hympavzi (marstacimab) significantly reduced bleeding and improved quality of life for adults and teens living with hemophilia A or B who have inhibitors.

Results from the BASIS trial suggest a weekly, non-factor option may help reduce treatment burden for this community.

12/31/2025

A look back at the posts that resonated most this year with the MS community 📊 https://bit.ly/3KFmjeX

🧡 These moments sparked conversation, connection, and community—and that’s what matters most.

12/30/2025

Learn more here: https://bit.ly/4aj5wc1

Thank you to Ashley Brooks for this post! ⚠️ Weakness detected.
That’s my body’s signal when my Myasthenia Gravis symptoms start to activate.

When it happens, I don’t push — I listen.
🪑 I sit down
🕶️ I put my shades on (hello light sensitivity + double vision)
💧 I sip water and give my body time to recalibrate

This is what living with an invisible illness looks like in real time — learning when to pause, not power through.

✨ Follow Myasthenia Gravis News for trusted information, lived experiences, and MG resources.

Grateful for brands that support chronic illness creators and help amplify real stories.

12/29/2025

Take a closer look at scoliosis in SMA: https://bit.ly/4iPDEhP

Scoliosis is a common part of life with SMA and can affect comfort, movement, and even breathing over time.

For some, monitoring or bracing may help support the trunk and slow curve progression; for others, surgery might be discussed to stabilize the spine and protect lung function, each with real trade‑offs to consider.

If scoliosis is on your radar right now, you are not alone in weighing options, asking hard questions, and pushing for care that fits your life and goals.

12/26/2025

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