Matthew's 8P Journey

Matthew's 8P Journey Living a happy life with 4 Rare Disorders

They called me 10 minutes after he arrived at school. He threw up. Not sure whats going on again.
01/07/2026

They called me 10 minutes after he arrived at school. He threw up. Not sure whats going on again.

01/06/2026

Learning using his communication tablet thru music 😊

Matthew loves music, it makes him very calm.

What's your favorite instrument?

01/01/2026

Matthew has grown so much! He is not a baby anymore 😭 in that 1st video he was only 2yo, just like Daniela is now.

He has worked so hard and he is continuing to amaze us every single day 💖

Even though it might not seem like a lot of progress at 2st sight, believe me there is. For kids with disabilities even maintaining the same abilities is a bug progress because by growing their body becomes weaker, they need to work very hard to keep up with the growth.

Thank you so much for your support over the years, I create this acct shortly after Matthew's birth, somehow sharing my thoughts and our life with strangers seemed easier than with my own family and friends.

Thank you and Happy New Year !!!

Happy New Year 2026!!!🥳🥳🥳
01/01/2026

Happy New Year 2026!!!🥳🥳🥳

12/27/2025

Worrying less thanks to AngelSense - Protecting Children

It's so great that we now also have a floor mount that allows Matthew to securely use his eyes gaze communication device...
12/26/2025

It's so great that we now also have a floor mount that allows Matthew to securely use his eyes gaze communication device in any position he's in.

Matthew is outgrowing his and the process of getting a new one isn't that simple, since he needs also a walker and an activity chair, and his wheelchair also needs adjustment. I'm praying we wont have issues with getting equipment approved but honestly I'm very worried. 1st step is seeing exactly what adjustment are needed and what new parts are needed for his wheelchair 1st as that's his main way of moving around.

In a couple weeks we have the wheelchair adjustment appt and we should know more about the equipment ordering process.

Mery Christmas and happy holidays 🎄🎅

Merry Christmas 🎅 🎄 kids had an amazing morning with lots of gifts and giggles 😃 some tears too, they were wanting to p...
12/25/2025

Merry Christmas 🎅 🎄 kids had an amazing morning with lots of gifts and giggles 😃 some tears too, they were wanting to play with the same toy 🤦‍♀️😂 thankfully they figured it out now 😃

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