Fragile X on the Spectrum

Fragile X on the Spectrum I want to share my experience as a parent of a child with Fragile X and ASD.

Learning about Fragile X through my daily life as a mom has taught me the importance of having a voice and taking note of the different ways we use them so we can diffuse the bombs, that can build inside all, with empathy.

This spoke to my soul!
06/22/2021

This spoke to my soul!

MY REACTION TO DON'T TAKE MY LIFE-[TS MADISON]A response to the rant.
06/16/2021

MY REACTION TO DON'T TAKE MY LIFE-[TS MADISON]
A response to the rant.

A response to the rant.

02/21/2021

Emelia is now in love with the park! But with the cold and wet all we can do is walk around and making silly faces! I'm excited for the future as my E proves time and time again she can break through her roadblocks! I think maybe I will too!

02/13/2021

The last time my 6 year old enjoyed herself at a park was at age 3. Since then it has been an up and down challenge for her to play with others and enjoy all the playground fun. Her anxiety got the best of her most days and we just stopped for long periods of time. This day she asked to go to the park and with hesitation I took her. It is hard to watch my child struggle and I feel uncomfortable so selfishly I stop trying. But she proves me wrong every time! As we scooted together to slide I felt her joy bubbling up. The swing was next! My girl does NOT do swings! Well she again showed me what her will can do! It started off rocky but she endured and I watched her push through her fear and soar!

01/18/2021

Upon discovery of these emojis E and I have our bedtime routine on repeat LOL!

11/05/2020

May baby tried to fit it all in this morning lol!

New Orleans zoo with Milzville!
10/29/2020

New Orleans zoo with Milzville!

I really appreciate seeing my child enjoying herself out of her safety net. Each time we go out of our the comfort of our home I never know what to expect an...

10/12/2020

❤️Click follow to be in E’s Village, Milzville

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Motivationals quotes: Overcoming Obstacles

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“FragileX ontheSpectrum” Give us your feedback! We’d love to hear from you!




10/11/2020
E enjoying her morning ride to therapy school! What’s your morning vibe?❤️ Click Like to be in E’s Village! Share to spr...
09/29/2020

E enjoying her morning ride to therapy school! What’s your morning vibe?

❤️ Click Like to be in E’s Village! Share to spread awareness! Comment! We’d like to hear from you!




QT time! E enjoying her grandmother!❤️ Click Like to be in our Facebook family! ...
09/28/2020

QT time! E enjoying her grandmother!

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Imagine being in a place where you are overwhelmed with sounds, curiousity, desires and fear. You’re overwhelmed, very o...
09/28/2020

Imagine being in a place where you are overwhelmed with sounds, curiousity, desires and fear. You’re overwhelmed, very overwhelmed. You need help but you struggle with communication. You know that someone around can help you but you can’t reach out to them. What would you want that person (that could help you) to do? Do it!

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Share to spread awareness!




Usually traveling includes my daughter and a lot of worries regarding logistics, safety, etc. This is the first time lea...
09/26/2020

Usually traveling includes my daughter and a lot of worries regarding logistics, safety, etc. This is the first time leaving her behind. If youve experienced this, please share tips on how to ease the anxiety.

❤️ Click Like to be in our Facebook Family!




E loves her OT! A really good Occupational Therapist is like a good hug from the right person! They help make your life ...
09/25/2020

E loves her OT! A really good Occupational Therapist is like a good hug from the right person! They help make your life better!

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Nothing says empowered like a person in a tutu! ❤️ Like our page to be in our Facebook family! ...
09/24/2020

Nothing says empowered like a person in a tutu!

❤️ Like our page to be in our Facebook family!





One way to underestimate the power of their love is to not acknowledge it. People with Autism have feelings. The beauty ...
09/23/2020

One way to underestimate the power of their love is to not acknowledge it. People with Autism have feelings. The beauty of communicating with them is like learning a new language that is unique to you and that individual.

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When you have a cute outfit and a good snack! E’s outfit of the day! She’s a whole mood! Like! Share! Subscribe to Fragi...
09/23/2020

When you have a cute outfit and a good snack! E’s outfit of the day! She’s a whole mood!

Like! Share! Subscribe to Fragile X on the Spectrum!




Happy Tuesday! This is E on our morning ride to school today! I’m grateful for the smiles, when she gives them.Like! Sha...
09/22/2020

Happy Tuesday! This is E on our morning ride to school today! I’m grateful for the smiles, when she gives them.

Like! Share your smiles! Follow!




Change is required for growth. Let’s grow together!People with special needs don’t need pity, just understanding. Like! ...
09/22/2020

Change is required for growth. Let’s grow together!

People with special needs don’t need pity, just understanding.

Like! Share your thoughts! Follow!




E’s outfit of the day! She’s determined to be independent and demanded to wear this shirt to school today. Like! Share y...
09/21/2020

E’s outfit of the day! She’s determined to be independent and demanded to wear this shirt to school today.

Like! Share your thoughts! Follow!






We are working on getting her comfortable with her new play yard. E likes sitting and trying to climb up the slide. Her ...
09/20/2020

We are working on getting her comfortable with her new play yard. E likes sitting and trying to climb up the slide. Her OT is working on climbing skills with her. She has what they call Gravitational Insecurity. What is something your child is conquering?

Like! Share your thoughts!




09/20/2020

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Baton Rouge, LA

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The last time my 6 year old enjoyed herself at a park was at age 3. Since then it has been an up and down challenge for her to play with others and enjoy all the playground fun. Her anxiety got the best of her most days and we just stopped for long periods of time. This day she asked to go to the park and with hesitation I took her. It is hard to watch my child struggle and I feel uncomfortable so selfishly I stop trying. But she proves me wrong every time! As we scooted together to slide I felt her joy bubbling up. The swing was next! My girl does NOT do swings! Well she again showed me what her will can do! It started off rocky but she endured and I watched her push through her fear and soar!

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