BloodStream Media

13/06/2025

We’ve got four community members joining us for an episode dedicated to aging with hemophilia this week! We hear from Jeffrey Moualim & Barb Forss, and Patrick sits down with Prisilla Oren, while Hanna chats with Walter Justus. It’s a special episode to celebrate the strength of our community, so don’t miss it!

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://bit.ly/thebloodstreampodcast

Presenting Sponsor: , visit bleedingdisorders.com to learn more.
Segment is brought to you by Genentech, visit www.hemashort.com to watch the short film.

12/06/2025

*Ever wonder WHY we’ve never really studied the female body?

Join Dr. Meghan McCormick on FLOW this month to
learn about the long term impacts of iron deficiency (symptoms like fatigue can be overlooked for years and lead to cognitive shifts)
dive into the value of research done by the ‘Iron Ladies”
learn about Thalidomide, which holds the answer to that question*

FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month - subscribe now https://www.bloodstreammedia.com/flow

Tune in for tips for self study, shared discoveries and to expand menstrual awareness.
Presenting Sponsor: , visit bleedingdisorders.com to learn more.

11/06/2025

On this episode of the PV Pod, we dive into the experiences of Steven Ames, who shares his journey with polycythemia vera (PV). Diagnosed during the height of COVID-19, Steven discusses the challenges he faced, including difficult interactions with healthcare providers, the importance of seeking second opinions, and the critical role of having a knowledgeable healthcare team. The conversation also highlights the significance of utilizing a broad support network, which includes family, friends, colleagues, and online communities, to manage the emotional and practical aspects of living with PV.

Watch, Listen and Subscribe: https://bit.ly/pvpodpodcast

05/06/2025

Breana Sinkfield is (awesome) and also the founder of Hope Runs Red, a youth-led initiative that aims to raise awareness and support for people affected by bleeding disorders. She tells us all about it on the latest BloodStream!

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://bit.ly/thebloodstreampodcast

Presenting Sponsor: , visit bleedingdisorders.com to learn more.

04/06/2025

Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni are on the latest gene therapy segment and Hanna poses the question- How do we know when gene therapy is the right choice—and is our system ready to support it?

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://bit.ly/thebloodstreampodcast

Presenting Sponsor: , visit bleedingdisorders.com to learn more.
It’s a Whole New World brought to you by CSL

03/06/2025

It's always great to get perspective on current policy issues affecting our community from National Bleeding Disorders Foundation CEO Phil Gattone. Only on the latest BloodStream!

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://bit.ly/thebloodstreampodcast

Presenting Sponsor: , visit bleedingdisorders.com to learn more.

03/06/2025

Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni are on the latest gene therapy segment and Hanna poses the quesion- How we know when gene therapy is the right choice—and is our system ready to support it?

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://bit.ly/thebloodstreampodcast

Presenting Sponsor: , visit bleedingdisorders.com to learn more.
It’s a Whole New World brought to you by CSL

28/05/2025

En este episodio de Mas Que Raras, tenemos el honor de conversar con la Dra. Manuela Ochoa-Urrea, quien está realizando su residencia en neurología de enfermedades raras en la Universidad de Texas Health. Originaria de Medellín, Colombia, Manuela es una doctora excepcional, llena de talento y humanidad. En esta charla, nos comparte su trabajo en Texas y enfatiza la necesidad y la importancia de incluir a toda la población en la investigación de enfermedades raras. Además, Manuela ofrece valiosos consejos para aquellos que deseen seguir sus pasos, inspirándonos con su pasión y creatividad.

Escucha y suscríbete!🎧 https://lnkd.in/gHWyMisv

27/05/2025

On the latest episode of Ask the Experts, we’re breaking down hemostasis with a road crew twist. Think of your blood vessels as neighborhood roads—when one cracks, the body sends in a repair team. But what happens when the crew is missing key tools? Or worse, when they start fixing things that aren’t even broken? Get the full breakdown from Dr. Mark Redding and Dr. Patrick Ellsworth of factor replacement, rebalancing therapies, and how your body manages damage control—one “pothole” at a time.

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://www.bloodstreammedia.com/expert

Presented by Sanofi US

24/05/2025

National Bleeding Disorders Foundation CEO, Phil Gattone, is back on the show to share his thoughts on the current events happening in our bleeding disorder community. Plus, Hanna speaks with Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni about how we know when gene therapy is the right choice—and is our system ready to support it? And, an interview with the founder of Hope Runs Red, Breana Sinkfield. All this and more!

Listen, Rate, Review, and Subscribe where you get your podcasts!
https://bit.ly/thebloodstreampodcast

Presenting Sponsor: , visit bleedingdisorders.com to learn more.
It’s a Whole New World brought to you by CSL

23/05/2025

Health IS political. 🩸

The changes in our government are effecting the bleeding disorders community and we talk about it right here on BloodStream. 🎙️

23/05/2025