How We Got Here

03/12/2021

We have to come together as a community in order to make progress. We want to thank Nii-Quartelai Quartey for creating an important distinction between equality and equity. Each person needs different tools in order to succeed and achieve the same results. Listen to the full episode here: http://ow.ly/Zu0F50H30ic

01/12/2021

Join Dr. Nii-Quartelai Quartey in this week's episode of How We Got Here and learn about his early exposure to advocacy and the call to care for others. Listen to the full episode here: http://ow.ly/cSbF50H1a4x

22/11/2021

"Illness is a call to action," and many of us will be called to care. Share your story below if this clip resonates with you. Listen to Robert Pardi Life Coach's full episode here: http://ow.ly/gPNw50GTL7E

19/11/2021

If you're taking care of a loved one, make sure that you take the time to understand what they want. As a caregiver, it might be your default to run in and fix or cure what's going on, but that might not be what your loved one wants. Learn from Robert Pardi Life Coach, and see them as the person you love and for the role that you play in their lives. Listen to the full episode here: http://ow.ly/CtH450GSg2a
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18/11/2021

Your illness doesn't define your identity. We wanted to thank Robert, for joining us today in such an important conversation and taking charge in his wife's care when she needed him most. Listen to the full episode here: http://ow.ly/NJ8L50GQllX
CC: Robert Pardi Life Coach Anthem Blue Cross Medi-Cal Anthem Medicaid

11/11/2021

Death is a taboo in American culture, but it doesn't have to be that way. Here's an opportunity to start a conversation and make sure that your wishes are known. We'd like to thank Michael Hebb for bringing these thoughts to the table. Listen to more here: http://ow.ly/VHyZ50GLs0E
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08/11/2021

After someone we love passes away, we often walk away with lingering, unanswered questions. We want to thank Michael Hebb of EOL, for the push to ask scary, tough questions before a loved one is no longer able to answer them. Listen to the full episode here: http://ow.ly/G4QH50GIH5p
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04/11/2021

We are kicking off National Family Caregiver's Month with Michael Hebb, founder of EOL and creator of Death Over Dinner. Learn about his personal connection to Alzheimer's from a young age and how it shaped his career. Listen to the full episode here: http://ow.ly/PWm850GGglb

01/11/2021

Has caregiving felt like a lifetime for you? When life's responsibilities keep tumbling and falling in our direction it's easy to feel overwhelmed. We want to thank Brenda for starting such an important conversation about the length of time that we spend caregiving. Listen to the full episode here: https://www.caregiving.com/how-we-got-here/brenda-blais-nesbitt-interview
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28/10/2021

It took one very special dentist's kind words to change Brenda's perspective on how to celebrate her daughter's capabilities and abilities. How are you celebrating your caregiving wins today?
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27/10/2021

Caregiving for a loved one, whether it's your child, a spouse, or a parent, can often feel like a lifetime endeavor. We thank Brenda Blais Nesbitt for starting an open and honest conversation about caring for her daughter and shedding more light on her new podcast with us, Caring Conversations. Listen to the full episode here: http://ow.ly/oMVU50GzyvJ
CC: Coaching For Caregivers Canada Anthem Blue Cross Medi-Cal Anthem Medicaid Whole Care Network

21/10/2021

Paid caregivers aren't paid that much, while many family caregivers aren't compensated period. We want to thank Tina Tchen for starting and continuing a conversation on caregiving at the political level. Listen to more here: http://ow.ly/Qqrr50GvCNQ

20/10/2021

Tina Tchen is a fierce voice in the realm of caregiving, and she brought important pieces to this conversation including gender equity, caregiving as a profession, and her expertise as a thought leader. We want to thank Tina for joining us in this discussion on caregiving and explaining how Building Back Better will put the US on a track to be more resourceful and compatible for caregiving. Listen to the full episode here: http://ow.ly/29KT50GuGAF

14/10/2021

Love and pain is a delicate line that caregivers balance every day. We thank Michael Allio for putting these thoughts into words and for expressing the vulnerabilities that caregivers experience along with those that they care for. Listen to the full episode here: http://ow.ly/mBdy50GrAHx

11/10/2021

It doesn't take much to be a great caregiver, as long as the love is there. Thank you Susie Singer Carter and Don Priess of Love Conquers Alz for starting such an important conversation that other caregivers can lean into. Listen to the full episode here: http://ow.ly/zeba50GpyLV
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08/10/2021

Millions of people in the world are living with Alzheimer's or another form of dementia. Are you experiencing these same fearful feelings? Thank you Susie Singer Carter and Don Priess of Love Conquers Alz for expressing these concerns and emotions so that caregivers and others can move forward in loving their relatives completely. Listen to the full episode here: http://ow.ly/lntf50GovcC

06/10/2021

We deeply admire the ways Susie Singer Carter and Don Priess are using media to destigmatize Alzheimer's disease and dementia caregiving. This episode was a lovefest. ❤️

Listen now: https://www.caregiving.com/how-we-got-here/susie-singer-carter-don-priess-interview

cc: Love Conquers Alz Anthem Medicaid Anthem Blue Cross Medi-Cal

Listen now to learn how friends and Love Conquers Alz co-hosts Susie and Don are using film and digital media to destigmatize Alzheimer's disease and dementia caregiving.

01/10/2021

Watching someone that you love, living life with a serious illness it makes an impact beyond them. It affects the whole family. Thank you Jodi-Ann Burey of Black Cancer: The Podcast, for making an important statement about the effects of an illness that go beyond the person living with it. Listen to this week's episode here: http://ow.ly/Lkn550GkkT4
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29/09/2021

Join us for the second episode of season 2, with Jodi-Ann Burey, from Black Cancer: The Podcast, as she talks about battle metaphors and how to communicate about tough topics with children. Listen to this week's episode here: http://ow.ly/xTA650Ginxy
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27/09/2021

Thank you Squirmy and Grubs, Hannah and Shane, for starting a needed discussion on the effects of disability in how people are treated and live. Listen to the full episode here: https://www.caregiving.com/how-we-got-here/shane-hannah-burcaw-interview
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23/09/2021

Do you call it caregiving? If you don't, what do you call it? Watch the full episode here: http://ow.ly/KWRO50Gfrmx

22/09/2021

How has your relationship with the person you care for changed as you've continued to care for them? Learn from Shane and Hannah who are documenting their caregiving to help change the way our society thinks about disability. Listen to the episode here: http://ow.ly/cVJF50GeF6L


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14/09/2021

If you don't express your loved one's wishes regarding end of life treatment, who will? Listen to Shoshana's story and see what you need to know in order to make your loved one's wishes known.

17/08/2021

It's important to take time out of each day to reflect on what we can do for others rather than for ourselves. How are you representing that message today? Richard Lui SKY BLOSSOM: diaries of the next greatest generation

18/06/2021

To our guests and listeners: Thanks for a great first season. ✨ http://ow.ly/opoi50FcK0B

💜 Jessica Zitter, MD Richard Lui Dr. Shoshana Ungerleider Aisha Adkins, MPA, CNP

cc: Stanford Center on Longevity ARCHANGELS MSNBC End Well TED National Hospice and Palliative Care Organization Caring Across Generations MemoryWell The Bachelor The Bachelorette Mettle Health

Chris and Christina are joined by How We Got Here producer Bill Odman for a retrospective on season one guests and themes.

03/06/2021

"We could simply say caregiving is very hard, but it's also amazing and pulls us into new places."

We 💜 BJ's outlook on how caregiving changes us for the better and are inspired by his penchant for curiosity.

Click here if you want a reason to smile today: http://ow.ly/Bmg750F1qk3

cc: Mettle Health Anthem Medicaid Caregiving Whole Care Network

27/05/2021

BJ Miller is a long-time hospice and palliative medicine physician and educator. He currently sees patients and families via telehealth through Mettle Health.

It was an absolute pleasure having BJ all to ourselves for an hour! Whether or not you know his story, we promise you're going to love our conversation. http://ow.ly/axVZ50EWZ4Y

How can we create a more caring society? Listen now to hear BJ's answer to this question and more on our final guest interview of season 1.

24/05/2021

In our latest episode, we asked Sarah about her decision to self-identify as a caregiver on national television. She also talked to us about how this part of her identity has been both affirmed and challenged on social media.

Hear more: https://www.caregiving.com/posts/sarah-trott-interview

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13/05/2021

If you're a fan of both caregivers and The Bachelor, you're going to love this episode.

We were joined by the delightful Sarah Trott who talks about how being on the show has enabled her to connect with young women navigating similar life challenges--specifically with ALS and caregiving.

Hear Sarah's story and find out how you can join her Facebook group, Sarah's Caregiver Community: https://www.caregiving.com/posts/sarah-trott-interview

cc: Whole Care Network Caregiving Anthem Medicaid

Sarah talks about her father's ALS diagnosis, self-identifying as a caregiver, and the unique decisions young people face when a parent is given a chronic or terminal diagnosis.

10/05/2021

"I think that the attacks against Asian Americans are a reflection of the frustration of how awful this last year has been. They become a scapegoat."

MemoryWell's Jay Newton-Small talks about the link between the pandemic and the rise in hate crimes toward Asian Americans, the risks of anonymity, and healing through forgiveness.

Listen to our entire conversation here: https://www.caregiving.com/how-we-got-here/jay-newton-small-interview

06/05/2021

We asked Jay Newton-Small: How do we create a more caring society? We loved her answer.

Here's a link to our conversation with Jay where talks about caring for her father and how storytelling helps increase empathy for others. Enjoy! https://www.caregiving.com/how-we-got-here/jay-newton-small-interview

cc: MemoryWell Caregiving Whole Care Network Anthem Medicaid

Jay Newton-Small talks about caring for her dad and how this experience led to the creation of MemoryWell on this episode of How We Got Here.

04/05/2021

Caregiving experiences are shaped by the unique identities we each possess. Aisha Adkins explains here why diversity matters when it comes to caregiving information and resources.

Hear more: https://www.caregiving.com/how-we-got-here/aisha-adkins-interview

cc: Aisha Adkins, MPA, CNP Caring Across Generations Whole Care Network Caregiving Anthem Medicaid

28/04/2021

We had a lovely time talking to Aisha Adkins about the ways care was demonstrated to her as a kid, the challenges of being a young caregiver, and how racial and gender identity inform and affect caregiving experiences.

Hear Aisha's story here: https://www.caregiving.com/how-we-got-here/aisha-adkins-interview

cc: Aisha Adkins, MPA, CNP Caring Across Generations Love Labor Project Our Turn 2 Care Anthem Medicaid Whole Care Network Caregiving

Learn more about Aisha's ongoing experience as a young adult caregiver and the moments that taught her how to ask for help on this episode of How We Got Here.

27/04/2021

Despite the resources available to Amy and her family, she was left with no choice but to file for bankruptcy as a result of care-related spending. Like so many other caregivers, Amy did everything she could to make sure her parents' care needs were met--no matter the cost.

Listen to Amy's full conversation with us here: https://www.caregiving.com/how-we-got-here/amy-goyer-interview

cc: Whole Care Network Amy Goyer, Family Caregiving Expert Anthem Medicaid

22/04/2021

AARP caregiving expert Amy Goyer talks to us about caregiver financial stress and why the term informal caregiver has got to go. Despite the serious subject matter, we shared a lot of love and laughs. Listen now 👉 https://www.caregiving.com/how-we-got-here/amy-goyer-interview

cc: Whole Care Network Amy Goyer, Family Caregiving Expert Anthem Medicaid

Amy Goyer joins How We Got Here to talk about her journey from music therapist and adult day services administrator to caregiving expert at AARP.

18/04/2021

What is a memorable moment you had with someone at the end of their life? In our latest episode of HWGH, Edo Banach, president and CEO of National Hospice and Palliative Care Organization, tells a touching story about a patient he once knew. Hear the full episode here. 👉 https://i.care.ly/3gbbGyA

16/04/2021

It's tough to think about our end-of-life wishes. And it can be even harder to tell them to others.

On this , hear more from End Well founder Dr. Shoshana Ungerleider about sharing our care preferences with the ones we love 👉 https://www.caregiving.com/posts/shoshana-ungerleider-interview

cc: National Healthcare Decisions Day (NHDD) National Hospice and Palliative Care Organization Coalition for Compassionate Care of California

14/04/2021

New episode released today! 🎉 We are excited to be joined by Edo Banach, president and CEO of National Hospice and Palliative Care Organization. He talks about the origins and misconceptions of , his passion for community-based support, and much more. Listen to the full episode to also learn what song Edo, Christina, and Chris want to hear at the end of their lives. 👉 https://i.care.ly/3gbbGyA

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Learn the three steps required to address gaps in hospice care delivery from National Hospice and Palliative Care Organization president Edo Banach on this episode of How We Got Here.

12/04/2021

Our most recent guest Dr. Shoshana Ungerleider, founder of End Well, reminds that . With an ongoing pandemic, you have permission to go for "okay" versus "great". We're all doing our best here. Listen to the full episode. 👉 http://ow.ly/WxsY50EmNaQ

07/04/2021

In the latest episode of HWGH, we are joined by Dr. Shoshana Ungerleider, founder of End Well. She shares how End Well initiates tough conversations around the journey of care and end of life, her experience of becoming a film producer, and more. Hear the full conversation here: https://i.care.ly/3fR7pjN

cc: Caregiving Whole Care Network RO & STEVE National Hospice and Palliative Care Organization End Game Documentary Crossover Health

Listen now for insights on finding resilience and having hard conversations about care and the end of life from doctor and End Well founder Shoshana Ungerleider.