08/09/2026
Life brings all sorts of trials and tribulations but for many parents there is one worry that never really goes away:
What happens to my son or daughter when I am no longer here?
For thousands of families of adults with intellectual disabilities, that worry is there.
Around 1,500 adults with an intellectual disability in Ireland are living with family carers aged over 70, with around 450 living with carers over 80.
Behind those figures are mothers, fathers, brothers and sisters lying awake wondering what happens next.
And we need to remember something very important:
People need more than care. They need a life.
A home. Friendship. Community. Choice. Security. Purpose. Somewhere they belong.
We cannot continue waiting until a parent dies, becomes ill or simply can no longer cope and then describe a completely foreseeable situation as an “emergency”.
The Before We Die National Assembly takes place in The Helix on Saturday, 19 September, bringing families together to demand proper long-term planning and residential provision for adults with intellectual disabilities.
Before We Die
Families deserve certainty.
Their sons and daughters deserve a plan, a home and above all, a life of their own.
https://www.beforewedie.ie/events/before-we-die-national-assembly