31/12/2021
We are relearning some ways to ātreatā autism realizing masking is not the goal once sought by many.
My daughter is not ātypical.ā
Trying to force her to be something that sheās not doesnāt work.
Letās play a game, shall we?
Hey, mom, you need to be autistic now.
What?
Donāt worry; weāll show you how. Weāre going to give you therapy to make you autistic.
But Iām not autistic.
Not relevant.
But ..
Weāre going to teach you to act autistic. All. The. Time.
But ..thatās not who I am.
Yeah, we know, but youāre going to have to get used to it.
But itās NOT WHO I AM.
No, itās not, but itās who you need to at least appear to be if youāre going to succeed in this world.
WHAT??
**
It hurts to be told - and shown - that who you are is not okay.
That how you experience the world is ... wrong.
That how you act is ā¦ wrong.
That how you express excitement, show fear, communicate joy, share sadness, and, and, and ... are wrong.
It is a life of No.
It is an environment of negative, toxic energy.
No.
No.
No.
A gummy bear for suppressing your natural instincts.
A sticker on a chart for mastering a facade.
It is exhausting.
It doesnāt work.
We cannot be who we arenāt.
Even if we can pretend well enough to convince the panel of judges.
Pretending to be someone you arenāt isnāt a life.
It hurts.
So I will not strive for normalcy for my autistic child.
Itās an asinine and dangerous goal.
Low self-esteem.
Depression.
Alcoholism.
Drug abuse.
Su***de.
Iāve seen them all.
And I emphatically reject that trajectory.
My daughter is not ordinary.
She is not typical.
She is not a standard-issue human.
Sheās much, much more.
So I will do everything I can to arm her with the tools that she needs to get by in a world that doesnāt fit.
I will teach her what will be expected of her in every situation I can think to include.
And I will tell her, by word and by deed, that her quest is not to make others comfortable, but to find the space in which both she and others can be as comfortable as possible, together.
That it is not a one-way street.
That she has every right to say, in her way, āThe fact that I donāt fit the mold doesnāt mean that Iām the wrong shape. It means that we need a more flexible mold.ā
I once believed that normalcy was our goal.
No more.
Now, we strive to appreciate and celebrate and foster that which is, truly, extraordinary.
{image is a photo of Brooke and me laughing, with huge thanks to Connerton Photography.}