FND and Me

17/08/2024

Okay so I am looking for investment for "FND North" If you know of anyone interested please tag below. I have started a Etsy store to try and raise some funds as well. Please take a look.
etsy.com/uk/shop/MyLifewithFND

Shop items by MyLifewithFND.

31/07/2024

Some changes coming up with the blog, I’m currently not sure how to tackle it but will work it out!

Sometimes having your life as public as I do with my blogs, has its downsides and it’s how we deal with them that makes us stronger, I’ll be making some edits today and hopefully have a update for everyone by end of the day today/tomorrow.

21/07/2024

Welcome back to another exciting blog post! Today, I'll be sharing some highlights from my week and what's coming up. So grab a cup of coffee, sit back, and enjoy reading my ramblings. Let's dive right in! Health Update and Work Decision This week, I visited my GP and received some not-so-great news. It turns out I have a bacterial skin infection....

Welcome back to another exciting blog post! Today, I’ll be sharing some highlights from my week and what’s coming up. So grab a cup of coffee, sit back, and enjoy reading my ramblings. …

15/07/2024

Welcome back to my blog, where I delve into my experiences living with Functional Neurological Disorder (FND). In this edition, I'll be covering various aspects of my life, including work, family, and the challenges of socializing. So grab a cup of tea, sit back, and join me on this journey. Navigating Work with FND Recently, I made the decision to return to work part-time after taking some time off to care for my children....

Welcome back to my blog, where I delve into my experiences living with Functional Neurological Disorder (FND). In this edition, I’ll be covering various aspects of my life, including work, fa…

10/07/2024

Introduction Hello everyone! It's been almost two years since my last post, and I can't believe how quickly time has flown by. I hope you all have been doing well and haven't missed me too much. I apologize for not being as active, but life has been quite chaotic lately. In this post, I'll be revisiting and reorganizing my thoughts to provide a more coherent update....

Introduction Hello everyone! It’s been almost two years since my last post, and I can’t believe how quickly time has flown by. I hope you all have been doing well and haven’t miss…

03/04/2023

Wow such along time since I posted. What is everyone upto? I have been busy building a new PC, and getting ready for a nice break away! Let me know in the comments.

03/02/2023

We hall all been working so hard on this, I'm excited to share with you one of the first events happening this year. FND Awareness Day is going to be one not to miss!

It's just 7 weeks until FND Awareness Day in the UK!

In addition to encouraging the FND community to share their and for everyone to support the cause .. we are collaborating with FND Dimensions, FND Friends, FND Australia and the Younger FND Fighters group to focus on .

More details will follow shortly on how you can get involved, and please do let us know if you have anything planned on or around the day, so we can share across our social media sites.

02/02/2023

Another day of meetings today, I will be back with another live stream very soon! Hopefully have some news by the end of the week about different events happening over 2023 so keep them eyes open! Happy Thursday!

26/01/2023

Unfortunately I am not going to be able to do the live steam today, as I will be in a meeting planning and organising new events for 2023. I will do another live very soon and keep you updated on any new events that will be coming up over the next 12 months.

22/01/2023

💥💥 We are back on Thursday with our fortnightly live stream, what shall we discuss this week? Let me know below!! 💥💥

12/01/2023

Thank you for getting me to 1k followers, I really appreciate it.
This page is about me and and my journey with Functional Neurological Disorder.
Please share and like the stream and any questions ask below!! 🤪🤪🤟🤟💪💪

10/01/2023

Okay, so I have set everything up for Thursdays live stream. I think it's ready. Will you be popping by to say hello?

09/01/2023

Today I have been referred to see a specialist in FND at a hospital a lot closer to home. Find out more this Thursday on my live stream!

06/01/2023

So 2023 is here anyone have any good new year's resolutions? Let me know below.

05/01/2023

Next week, our first live, I'm freaking out.
Thursday, 12th January 1pm get it in the diary.
Will you be there?

05/01/2023

📣📣📣📣📣

03/01/2023

Beat thing you do to unwind?
Answers below!

02/01/2023

So plan for 2023, continue my work with FND Action and bring you live streams across Facebook and YouTube.
I'm scared to say the least, but together we can do this. Are you ready?

28/12/2022

What a honour to be asked to be on this podcast! Please have a listen and any feedback or comments are welcomed.

FND Action - Functional Neurological Disorder UK

In this episode I chat to Matthew about his experience in a secure unit, mental health and the volunteering work he does for FND action.

11/12/2022

Anyone got any tips on how to stay warm, it's far too cold out there! Stay safe everyone!

09/12/2022

I recorded a podcast yesterday for Life with FND -Functional Neurological Disorder

Can't wait for it to be published so I can share the thoughts that are in my head.

Thank you for having me on your podcast.

In other news, I'm going to be setting the live stream up for begining of 2023, new year new start. I will overcome the fear and you will get to see my face, which should be only on radio 🤣

07/12/2022

Who wants to see a live video stream from me, talking about my experience with FND.

01/11/2022

We always need some extra help on the social media, check original post for details.

Here at FND Action, we are always on the lookout for new Volunteers.
If you're interested in becoming part of the Facebook Admin team, please use the link below and register your interest now!

https://www.fndaction.org.uk/facebook-volunteer-form

01/11/2022

FND Action Campaign. . Functional Neurological Disorder. Get Involved.

25/10/2022

While feeling a little more human today, we took our children pumpkin picking. They had lots of fun, and now it's time to starting carving pumpkins.

24/10/2022

Sorry I haven't been around much this week guys, I have had a bad chase on tonsilitis which has knocked me off my feet, starting to feek a little more human again now so should be back to full swing in a day or two!

17/10/2022

My wife is watching all her quiz shows tonight, while my brain can't understand the complex quiz' I will be resting for the evening.
What do you do to unwind?

17/10/2022

Well......

What can I say except thank you to each and every one of you, I knew I was close to 1k followers, and my aim was to reach this by the end of the year, but you people have pulled it out of the bag. Thank you from the bottom of my heart.

As promised, I will organise a live stream for you all, I just need to work out a few things first so please bear with me while I get it sorted.

14/10/2022

When we hit 1000 followers, I will do a live stream and have a chat with you all!
A milestone which I thought we would not even come close to.