Jaxson's Journey

20/12/2024

Merry Christmas, from Daddy, me (and the ducks)! 🎅

16/12/2024

Daddy is beyond proud of 'Mr Pickles' tonight, who absolutely demolished his jacket potato and beans! While some see a young boy eating his food, those who know will realise that this is a far bigger struggle, at the hands of GERD (reflux), pureed diets and sensory challenges that have made this a far bigger accomplishment - we did it! Daddy can rest easier, knowing he's taught his best friend well... 💪🏻

01/12/2024

After a while out of the pool, we were glad to be creating a splash again! 💦

26/11/2024

When you start to learn your animal noises... 😂

18/11/2024

Making memories with Daddy! 🧡

08/11/2024

Someone's feeling a little run down, so we had some cuddles around our playtime today! 🧡

04/11/2024

Big cuddles with Daddy! 🧡

31/10/2024

Happy Halloween! 🎃

31/10/2024

We're delighted to see some potential change in the SEND and Healthcare sectors announced in yesterday's budget, but we are still keen to see how this translates for families like ours.

Earlier in 2024, we joined the campaigning efforts on central Government for better provision for the Palliative and End-of-Life Care (PEoLC) sector, by asking the 'Health and Social Care Minister' to make assurances tha...

27/10/2024

Preparing for Halloween, with Nana putting up some decorations today, while visiting! 🕷

26/10/2024

Daddy and Jaxson-James causing a bit of a splash! 💦

25/10/2024

Jaxson-James loves nature, watching the birds, the fish and enjoying the tranquility. When immersed in natural beauty, we just sat back and enjoy the peaceful surroundings... 😎

23/10/2024

Someone's living life in the fast lane, handsomely still enjoying his birthday presents! 🧡

13/10/2024

One busy weekend is coming to a close... Just time for a quick cruise around first - BEEP BEEP! 🚗

13/10/2024

Someone's got the hang of one of their many birthday presents (his new scooter), riding around, while giggling and even managing to stop to check on his surroundings too...😎

11/10/2024

A huge milestone has been reached - Jaxson-James turned 2 today! 🎂

Any birthday for someone so young is a special and magical celebration for family and friends alike, but today was a truly massive moment for our family, as we celebrated a remarkable effort of strength and resilience from 'our Champ', who has continued to defy all odds and even his given medical prognosis, too! 🎉

A big 'thank you' goes to those who made it to celebrate this huge achievement and to those who have sent cards/gifts and messages of well-wishes to a truly overwhelmed, but very happy little dude... 🙏

Daddy is immensely proud of you, son - for not only continuing to knock it out of the park, but for being the happiest little guy, with such a loving, gentle and kind soul too, as well as the bestest, best friend I could have ever asked for. You're my 'King for the Day', today and every other day and I will remain your biggest fan, indefinitely! 🧡

Love you to the Moon and the Stars, now and always, forever and always, Daddy
- ###xx -

10/10/2024

We had the best time at the soft play, before the dreaded haircut 💇‍♂️

28/09/2024

Some well earned family time was had today, with Jaxson-James enjoying play time with his cousins too...! 🧡