Ethan and Daittons amazing journey
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- Ethan and Daittons amazing journey
This page is for people to see what life is like living with twins but also twins with two different syndromes. Both boys are extremely unique.
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Ethan and Daitton’s amazing journey
Hiya not sure what to write. The reason I have set up this page is for my amazing twin boys yes that’s right they are twins!. My boys are an inspiration they were born in 2011 we were told nearly straight away that Daitton would be severely disabled they told us he would not survive they wasn’t sure about Ethan during the pregnancy but when we got there genetic tests back it showed that Ethan had a unique rearrangement of his chromosomes and that Daitton had wolf hircshorn syndrome. As you can probably imagine we was devastated but we were holding the two most beautiful boys in our arms. We learnt how do medical stuff that no parent should ever have to learn we stayed in hospital for weeks and months on end birthdays, Christmas, New Years but we always knew our boys would fight. Over the years we have over come some difficult hurdles to name a couple both boys started having seizures from a young age we discovered Ethan could hardly see and is registered as severely sight impaired than we discovered he had hearing loss aswell. Daitton having to have multiple surgeries to repair his cleft lip and palate and than to put in a PEG which is a feeding tube in his stomach. Even with all of this going on we have had some amazing moments loads of laughter and giggles massive achievements to name a couple Daitton having a few spoonfuls of food, Ethan crawling daitton sitting unsupported. We have made so many memories to name a couple going to blackpoll and seaing the sea for the first time, going on rides at Drayton manor, feeding goats, holding owls. This is the reason I have set up this page so friends, family members or anyone that has a special child can see what our boys have been up to. My boys are my inspiration and others to they have over come and surpassed what the doctors ever thought was possible and we could not be prouder. 8 years on both boys go to school which they love we dream and hope like anyone else yes our dreams and hopes may be a lot different to other parents we cherish the little things wow my boys are so amazing and I’m one lucky person to be the parent to these two inspirational boys. We hope you follow us and enjoy looking at there progress through life
