06/06/2024
This has been the most EPIC AND equally CHALLENGING time in my life... 21 months ago, I joined the wonderful and exciting band, Machaira, as music director. What an amazing ride this has been... at the time in October 22, I had just gotten off my cancer treatments. As the whole project evolved through 2023, the shows started to become more EPIC, the vision that Dennis and i had, started to grow into something much bigger; and through March until Sept. we embarked on a massive recording project. In this time, I had to start dealing with my crazy road of neuropathy, Chronic Regional Pain Syndrome, and just feeling yuck while being in a cancer battle that had gone on for 8 years at that time.
In order to do that it became apparent taking Lyrica 8 times a day was getting crazier! So in September 2023 I had a Spinal Cord Stimulator implanted in my back. Two electrodes up my spine and a generator and battery installed in my lower back . I'm now BIONIC Coop complete with AI and I control it (LOL) with my iPhone app custom built by Nevro. The first one with AI. Let's just say it's been a wild ride!!
The start of 2024 was off to a big bang, with the biggest set of music videos, a one hour film documentary on the band and why musicians need to be creative and you guessed it : a the possibility of a Reality TV show. As this vision grew, 5 networks have shown significant interest and it has grown in vision WAY bigger than I previously envisioned. The Life Is A RockNRoll Circus is unfolding and it'll be EPIC even more.
At the same time I started to struggle with pain, breathing, etc etc so the AL Amyloidosis started affecting me again and this NH lymphoma came back and for the 1st time in fighting cancer , now 9 years. I started doing chemo this time. I always did immunotherapies. I reluctantly have started this and it hasn't been fun, today is a 7 hour infusion. Tomorrow another 3 1/2 hour chemo session. I'm a fighter I'm not done! I could really use some cheering up, and to those that pray for my miracle please don't stop. My Circus family of bandmates are absolutely amazing and they really make life SO much more fun. My wife Renee is so amazing, I wouldn't have gotten this far without her...
I've created some artwork that I'm having so much fun with from a recent filming session.