Addison Kemp’s Aplastic Anaemia Page

08/01/2025

Addison won tickets to watch the new Sonic The Hedgehog Movie from 96five and Yatala Drive-In kindly allowed us to retrieve this gift with them because Addison can’t be in public places. So no cinemas. Her first movie experience 🎥 🍿 🥰

08/01/2025

I’m so angry and services Australia!!!

There is nothing, absolutely nothing to help us families!! The only way you can have crisis payments and help is if you are domestic violence, new to the country or been in jail or psychiatric treatment.

Having a sick child, loosing your income, paying double the bills and expenses. Means nothing!!!

“Sorry, a food bank can give you food. It’s all out of date though. You can still eat it.”

That really helps with my child who is on a low bacteria diet!!!

Something seriously needs to be done!!

06/01/2025

When these photos pop up, they just make me smile. How beautiful You are Addison 💖

02/01/2025

I often get asked “why do you have a GoFundMe account, when hospital is free”.

That’s because it’s not all free, and there is lots of associated costs.

We never actually wanted to do a gofund me at the beginning. It was a reporter who covered Addisons story that advised us to. When on the ward I find myself telling other parents they will need it. And sure enough, then they do. Without this, I don’t think we would even have a roof over our heads, or food in our bellies.

Being away from home, meals, constant travel, emergency arrivals, the list goes on….

I’ve attached a link from a study done from ScienceDirect. But for a quick read, I’ve copied and pasted Australian finding below;

📌
Indirect costs for the child and family (eTable 3g)
Indirect costs refer to both monetary and non-monetary burden experienced by the child and family. Three studies10,64,65 reported on family costs for travel/parking, accommodation/meals. and loss of productivity. They concluded significant financial burden particularly for single-parent families and those of low income.10,64,65 The first study (2004),64 reported weekly costs of around AUD$315, while the second study (2010)10 identified costs between AUD$400 to over AUD$530 per week (for budget and average meals respectively). A more recent study (2018)65 estimated AUD$687 per patient day including loss of productivity. Productivity estimates were based on time off work by caregiver and other family/friends to care for the child in hospital and other dependents. Travel costs were estimated at AUD$104 per day while meals, accommodation and incidental expenses were estimated at AUD$42 per day. Living in a remote area and greater distance travelled correlated with higher family costs. While families report high financial burden associated with their child's hospitalisation, programs such as family-centred care contribute to positive outcomes for the child and family in hospital.66

Full read is here; https://www.sciencedirect.com/science/article/pii/S2666606523001967

So if you wanted to help our GoFundMe link is below👇🏼

💚 https://gofund.me/4bd4dade

💖Thank you

31/12/2024

Welcome 2025 🥳 Kemp #2025 Daniel Kemp Bianca Kemp Addison Kemp’s Aplastic Anaemia Page Children's Health Queensland Starlight Children's Foundation Australia Children's Hospital Foundation

25/12/2024

When the Addison & Crimson met Santa 🥰🎅🏼🎄

23/12/2024

Another feed of the story on ABC Brisbane and ABC News

22/12/2024

💖Addison Update💖

Firstly, we wanted to thank everyone who has reached out to say they’re thinking of us. The last week has been incredibly hard!

This is pretty much how Addison is daily. Crouched over screaming in pain. On Panadol and morphine, still screaming “my head hurts, my head hurts” over and over again. We get some reprieves of the pain. She starts showing signs of improvement. For it to come crashing down with another day and night of screaming in pain.

All the hard work we did getting Addisons procedural anxiety better has gone out the window. She’s lost trust in us all, due to us not being able to manage her pain all the time.

We had to take out her central line last admission because a bug wouldn’t leave the plastic. Now we have to use a long cannula with the pic line to complete all Addisons medications and her sensory issues have her screaming at us every flush!

She constantly was vomiting yesterday and threw up her NG tube. I don’t think she had any real nutrition for a week now. She’s vomited her feeds up an only had a few bites of food to eat.

I’m broken. I’m tired. I feel useless. I have a recording of her screams to show the doctors and it would be to traumatic to share!

We just want our little girl to be better!

21/12/2024

Addison gracing ABC Brisbane and ABC News screens and social media this morning 🥰

The wishing tree at the Queensland Children's Hospital in South Brisbane stands 24 hours a day, seven days a week all through the year.

18/12/2024

Someone has been given an ipad with Moana2 on it!!!!! 😲 yes, the Starlight Children's Foundation Australia captains have strike again with Addisons heart strings!! #2 🌺🌸

14/12/2024

***Addison Update***

14/12/2024

Addison was rushed into hospital, code 1 this evening. She started saying she couldn’t see and then went into a seizure. This seizure went on for 40 minutes.

We had 2 ambulance crews arrive. Was rushed with lights and sirens to the CHQ. We was going to attend Redlands. But her oxygen had improved and the supervisor of the ambos (second vehicle that attended) said it was best to go the QCH.

CT has showed nothing. MRI scheduled for tomorrow morning.

I was able to get a video of the seizure, which has allowed the doctors to believe it to be a Focal Seizure.

Waiting for her to be closer to her base line. Then we will be moved to the ward otherwise it will be PICU.

Both Daniel and I are drained. I was able to get ahold of our babysitter and Daniel came to the hospital following the ambulance.

Poor Crimson saw it all!!! She was quite distressed and then de compartmentalised on her iPad by putting the volume up really loud while we was going through the motions with the paramedics. Poor baby is getting just as mentally screwed as Addison with all this!!

Lots of prayers and positive thoughts for our munchie please. Not sure how much more of this she can take.

*update

Blood gas test are good and we’ve been moved to the ward. Now to see what the MRI says.